Guilt, Self-Loathing, & Affliction

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Hurricane Matthew did not spare me. When we returned home from the evacuation, we discovered that an enormous pine tree fell on my house. I am devastated beyond what I can succinctly express. It will be thousands of dollars to remove the tree and even more to fix my home. The back of my house is damaged; the entire backyard is filled with the tree, as it is massive, like a California Redwood.

I am without homeowner’s insurance. I am displaced from my home and am an extraneous, immediate hardship on my parents. My depression and anxiety have increased exponentially. My guilt is so heavy; I can recognize nothing practical to be done. If only I had been in my home, under that tree when it fell, I could have unburdened my family once and for all.

This disaster has now made manifest an even greater guilt that I so carry with me always. Constantly, I am anxious and worried. I am now an even greater encumbrance to my family than I was before. The weight of my life and the torment of my mental anguish becomes greater by the day. I do not know what else God can ask of me to bear. Every time I think I find a small amount of footing, I am again knocked to my knees.

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These were the words that I declared onto Facebook, emotionally, but honestly.  I wasn’t exaggerating my desperation:

When you are bipolar, and already in the midst of enduring an emotional flare and you hit a legitimate major crisis, self-harm and suicide rates rise dramatically.

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In the weeks leading up to the hurricane, I’d been becoming more and more depressed, despite the lifestyle changes that I’d made and the medication I was taking.  Looking at my mood charts from this time last year along with my blog entries, it’s clear that this time of year is when I struggle with serious, clinical depression.

This is when I have the days when I can’t get out of bed.

When I believe I don’t deserve human niceties, such as bathing or clean clothing.

I never revealed this, but, last year,  lack of self-care hit such an all-time low during the winter months that I was sometimes asked if I was homeless while outside exercising.

Why am I telling you this? Because I want you to understand the level of hatred I sometimes feel for myself.

I am an incredibly insular, selfish person, but I have a penchant for self-deprivation when it comes to self-care.  And this is not because I am lazy.

Self-care restriction is an extension of anorexia in that the disorder itself is simply self-deprivation in and of itself.

  I SHOULD SUFFER.  I DO NOT DESERVE.

ANOREXIA IS TO SUFFER.

It is the restriction of food.  Does a diet feel like punishment to you? Anorexia feels like hell to me.

BULIMIA IS TO HAVE AND HAVE NOT, BUT TO DIE FOR THE SHAME OF WANTING.  

Bulimia is a cyclical, unending, unstoppable inescapable punishment.  Does overeating feel like guilt to you? Bulimia feels like degradation to me.

TO NOT BATHE IS TO SUFFER. Does a skipped shower feel like an itchy inconvenience to you?  It feels like the infliction of a paltry penance to me.

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This internal torture, my madness, I understand cognitively that it is faulty thinking.  It’s not right, there are missing synapses firing in my brain, making me feel strongly in ways that I shouldn’t.  

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I am not well.

Does God not like us to select our own punishments when we feel we deserve self-deprivation?  Is he angry that I am taking matters into my own hands by suffering or does he perhaps feel I simply have not felt enough pain?

I am writhing in pain, graceless.

And this, this is a new punishment.


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Is Bipolar Disorder Caused By Inflammation?

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Targeted Treatment Could Be Option for Depression-Related Inflammation

FIRST PUBLISHED ON INSIGHT BULLETIN 

Inflammation is our immune system’s response for fighting off danger in our body, and scientists are beginning to link inflammation to psychological disorders such as depression.

Severe depression affects 6.9 percent of the U.S. population, and more than half of people with major depression are unable to find relief from their symptoms with antidepressants. Interestingly, about a third of depressed patients have consistently high levels of inflammation.

Evidence now suggests that inflammation is more than something simply found in some depressed patients—it could be the cause of their disease. Researchers think the immune system is responsible for this long-term effect due to traumatic events earlier on in life.

In 2012, Duke researchers conducted a study on the connection between inflammation and mood disorders. They looked for the presence of an inflammation marker in the blood called C-reactive protein (CRP). The high amount of CRP led them to believe that childhood emotional distress could lead to the foundation for inflammatory processes in the body.

Duke researchers found the number of cumulative depressive episodes was associated with increased levels of CRP, but they could not definitively say that inflammation caused depression. Rather, the researchers scratched their heads as to whether the presence of depression itself caused inflammation in a chicken-or-the-egg-type scenario.

Now, it’s clearer that the immune system can alter cognitive functioning.

According to Carmine Pariante at King’s College London, “Nearly 30% to 40% of depressed patients have high levels of inflammation, and in these people we think it is part of the causal process.”

An article by the BBC noted Pariante saying, “the evidence supporting this idea is that high levels of inflammation are present even if someone is not depressed, but is at risk of becoming depressed. Adult individuals who have a history of early life trauma, even if they have never been depressed, have an activated immune system so they are in a state of risk.”

But it’s not just the immune biomarker in the blood. There’s something else that’s been found to make the connection.

There is evidence that IL-6, a chemical normally secreted by white blood cells to stimulate an inflammatory immune response to infection or trauma, can affect brain activity in a region called the subgenual cingulate. This region is thought to control mood and anxiety, sleep, memory and self-esteem.

Joseph Hayes at University College London identified a significant link between high levels of a chemical involved in inflammation at age 9, and experiencing aspects of hypomania at age 22.

Additionally, a recent New Scientist article revealed that, high levels of inflammation present in a child could go so far as predicting a higher risk of manic behavior in later life.

Manic behavior can be present in not only bipolar disorder, but also seasonal affective disorder and some forms of psychosis. This is enormous progress for all mood disorders, but especially significant for Bipolar Disorder as the disorder is rarely correctly diagnosed until after a person has a manic episode. Women in particular, are “susceptible to misdiagnosis”, and many have to endure many years of untreated mood disorders because of misdiagnosis or lack of treatment.

In the study that solved the chicken-egg connection, PET scans showed significant inflammation in the brains of the people with depression, and the inflammation was most severe among the participants with the most severe depression. People experienced clinical depression exhibited an inflammation increase of 30% in their brains. The study focused specifically on the activation of microglia – immune cells that play a key role in the brain’s response to inflammation.

This new finding could lead to changes being made in the way mood disorders, such as Bipolar Disorder, are treated and how future studies should investigate the possible impact of anti-inflammatory drugs on depression symptoms.

A group called NIMA (Neuroimmunology of Mood Disorders and Alzheimer’s Disease) is currently investigating whether targeting the immune system to fight specific types of inflammation could treat these conditions. They may have a pill to target that specific type of inflammation.

Hopefully, drugs targeting the immune system will provide much-needed treatments for patients.


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Hurricane Matthew Update

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For those of you who don’t know, I live in South Daytona, Florida, directly in the head-on path of category 4 Hurricane Matthew.  Last night, I was forced to evacuate my home.  My dad helped me try to quickly  prepare my home as best as we could before fleeing for safety.  Both time and funds were insufficient to board up my windows with plywood, but we were able to get the sandbags in front of the doors to help prevent flooding damage.  I’m currently safe, staying with some family in The Villages, Florida, which is located in central Florida.  

A total of 180 shelters have been opened.  23,000 people are in shelters now.  

All of the bridges in St. Johns Counties are closed.  All of the bridges in Flagler and Volusia counties are also closed.  

Flagler County and Coastal Volusia Counties have gotten the worst  of the hurricane so far with storm surges, flooding, and wind gusts of about 100 miles per hour.  

There are a lot of downed trees, power lines, and

Three people in Florida have lost their lives and this is the most updated information available.  Two in Port St. Lucie and one in Volusia county: a woman died when a tree fell on her.

So far, there’s been two in Port St. Lucie and one in Volusia county.  The Volusian woman died when a tree fell on her.

 It’s still really bad in Daytona Beach and Daytona Beach Shores.  I don’t know if my house is still standing, but I’m physically okay. Right now, our area doesn’t have any power.  The majority of Volusia County does not have power right now.   

More than One Million Households Are Without Power.   Continue reading »


This Is All About Pain

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“Are you going to eat all that yourself?

The delivery guy’s expression was incredulous as he handed me my order–an order, which, I’d used compromising means of obtaining, so desperate and pathological the means of my destruction had devolved.

I paused, immediately conjured a plausible lie, dismissed it and admitted, “Yes.”

“Whaaat?” He assessed my frame in disbelief.  “But…how?”

I had no energy for shame or mortification.

“I’m going to throw it all up when I’m done.”

Caught off guard by my candidness, his speech faltered, “Oh!  OhmyGod.  I’m sorry.”

“Don’t be.  It’s not your problem.”  I pause.  “Only, if you don’t ask your customers so many personal questions, you might not have to deal with so many personal answers.”

He nodded, reaching for the signed receipt.

Now, he is finally walking away, and I think he is going to let me be.

Still, not put off, he’s got one more for me.

“So…you’re like, Anorexic or somethin’”?

Yeah, buddy.  Or somethin’.

They don’t understand.  It isn’t gluttony.  And isn’t hedonism.

This is not about pleasure.  This is all about pain.

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Credit: Pixabay

Near or distant, it’s likely that nearly every family has at least one “mad” relation.  You know who I’m talking about; the one who’s responsible for the legendary tales of insane behavior, collective embarrassment, and general familial strife? Chances are if you’re reading this essay, you either love a “mad” person or are one of them.  Well, you’re in good company my friend.

As late as the 1970’s, those “affected” were institutionalized in barbaric versions of asylums and hospitals, a la One Flew Over the Cuckoo’s Nest.  Strides made in modern medicine and mental health care ought to reduce the destructive ripple effect these individuals wield upon their respective families, but, in my estimation, it hasn’t done much to help.

At best, positive changes have been minimal;  mental illness poisons entire families.   The reality of mental illness is that there is no cure, only strategies of maintenance and coping.  The management of mood disorders is largely guesswork: trial and error requiring time, patience, resources and information.

And step one is diagnosis.

Correct diagnosis, that is.

From childhood into my early 30’s, I’ve been the unwilling passenger of a perpetual rollercoaster, with violent emotional waves dictating my behavior, decisions, and interactions.

I felt (and still feel) so wrong in the head, not understanding the constant intensity of emotion, the internal turmoil always clutching at my insides.

I’ve been confused by the behavior of those around me.  Everyone else seems so relaxed, so unaffected, so very, very even.

When I was younger, in elementary, middle and even high school, it frustrated me to no end that, when I was in a manic rage or sobbing desperately, my parents didn’t seem to take me seriously, dammit.  In fact, they often appeared amused.

Outrageous! How dare you! This is life and death we are talking about here!

I was quite indignant.

Talking to my dad about it now, he tells me: “I didn’t realize anything was really wrong.  I just assumed the fighting with your mother, the emotional outbursts, the dramatics…that it was all part of being a girl.”

Sexist, maybe.  Understandable? Absolutely.

Most of the time, I covered up the illness.  I desperately wanted (and still want) to fit in, be accepted, appear normal, be liked and admired.

And still, to this day, I seek external validation.  My 20+ years of Anorexia and Bulimia can certainly attest to that.

But of course, an Eating Disorder is not ever about just one thing.  Yes, a significant part of me wants to appear attractive, controlled, on top of things, and strong (ha ha…ha), BUT the main role of my Anorexia and Bulimia has been a homemade mood stabilizer,  only I never realized its true function until 2014, when I was finally diagnosed with Bipolar Disorder.

For years, family, doctors, psychologists, and therapists attempted to treat only the presenting symptoms: the starving, bingeing, purging, over-exercising, self-harming behaviors.

All the while, not seeing the forest from the trees.

At my sickest, I felt angry at them.  Patronized.

My problems were chalked up to the trivial pursuit of beauty.  Thinness. Perfection.  Attaining the unattainable, blah, blah, blah.

My parents theorized it was a preoccupation with vanity; a hyperbolic representation of societal standards for the aesthetic ideal.

The times when I veered toward the danger zone, more dead than alive, they realized it had become an obsession over which I’d lost control; a set of destructive behaviors so addictive and necessary that I was willing to die for them.

And I may, still.

My parents tried to understand, but they did not have all the information.

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Credit: Pixabay

Wanting very much to keep me alive, they’ve attempted all conceivable ways to help: spending tens of thousands of dollars on treatment, hospitals, rehab, therapists, doctors, and dentists.  Arguing with insurance companies on my behalf, fighting for more comprehensive care.  Seeing me through divorce and bankruptcy.  Moving me back home and opening their own homes to me, all the while providing financial and emotional support.  Straining their own relationships, prioritizing my needs at the expense of my siblings.

I am a living, breathing investment.

And then.  

Then, the true and full extent of my family’s unconditional love, support and patience was tested when I had my first psychotic manic episode.  I had initially not been diagnosed with Bipolar Disorder because, for years, doctors, psychologists, therapists, and counselors had been focused on the presenting symptoms of my eating disorder.  Forest…trees…you get it.  

 Around the time of my divorce, my family had helped moved me back home, at their time and expense, I might add, but I’d already been relapsing into Anorexia once again.  Historically my anorexia has always manifested as sub-type 2: purging type.  What this means is, that I primarily restrict my calorie intake, but if I do binge, or even eat normal portion sizes, I will purge through vomiting.  During anorectic relapses, this behavior is always accompanied by excessive exercise.  I normally run 45 minutes to an hour, but during a relapse, a two to three-hour workout would be about average for me.  OCD behaviors always intensify during these times as well.  

Having refused to go to inpatient eating disorder treatment during this relapse,  I was seeing both a medical doctor and an outpatient therapist regularly, at my family’s behest.  The doctor, in an attempt to treat my “depression and anxiety” prescribed me anti-depressants, which promptly sent me into full blown mania.  

Starvation-and not in the hyperbolic sense, mind you-combined with, well, basically speed for Bipolar people, made me a fucking lunatic.  

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Credit: Pixabay

 Compounding that, a Bipolar person, having a mixed-manic episode, I was readily and enthusiastically putting myself in peril. There’s that impulsive, risky element that’s so magnetically attractive in this state; even suicidal thoughts are idealized and appealing.

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Early Intervention Is Critical For Children’s Mental Health Services

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Early intervention is important, but it can’t be the parent’s entire responsibility. School’s *do* have to offer this kind of support: mental illness is more widespread among youth than people realize.

According to a recent article on Spectrum:

Both girls have been diagnosed with psychiatric conditions — Sydney with bipolar disorder and Laney with a similar condition called disruptive mood dysregulation disorder. (The family asked that their last name not be used, to protect the girls’ privacy.)

School has been a real challenge for them. That’s not unusual for the one in five children in the United States who have a psychiatric condition. They often experience anxiety, difficulty focusing and social challenges. Half of them drop out of high school, in part because many schools don’t manage to meet their needs.

Selena has spent the past eight years trying to get the girls the resources to help them succeed. Like a lot of parents of kids with mental health issues, she’s had to be her children’s biggest advocate.

Read the article from Jenny Gold via Spectrum:

Parents battle for children’s mental health services at school

Parents battle for children’s mental health services at school

Bipolar Disorder Butterfly Round Sticker


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National Suicide Awareness Day 2016

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When it comes to emotional navigation, August and September are historically very difficult times of the year for me.  I typically cycle through major depression at this time.  Last year, I was passively suicidal.  One year later, I am relatively better due to the trial and error guesswork of nearly 20 different medications, but I’m still not well. Moreover, my moods are not stable and I’m profoundly depressed relative to where I was about a month ago.  I started feeling bad right around the time that August began.  Much to my objection, my medication had been changed about halfway through the month, which sent me into a depressive freefall—but still, I kept living.

It is unfair of me to expect someone who does not share my illness (or one like it) to completely understand.  If you have never stood on the shore and looked at the ocean, you don’t know what that feels like. If you have never flown on an airplane, you don’t know the sensation of take-off or ascension.

Mental illness = same thing.

It must be experiences to be understood. Don’t get me wrong, people can be there for you. They can try to put themselves in your place. They can read about your illness. Attend NAMI meetings. But when you are laying in your bed, unbathed for days, cell phone battery dead, thinking of the easiest ways to die – that, dear reader, can be hard for them to comprehend. Because, after all, “You have so much to live for,” “Nothing’s that bad,” etc.-bbb

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Today, on , I felt deeply depressed and profoundly hopeless.  My personal life in shambles, I’m an emotional wreck.  My thoughts are constantly disorganized and I’m nowhere near where I thought I’d be at this time a few months ago.  I’d expected to have certain matters settled that still remain up in the air.  I feel like I have actual, VISIBLE question marks floating above my head.  I can almost feel an electrical crackle of anxiety cascading from each shoulder down my arms to my fingertips.

To make matters worse, I have no food in my house. I am hungry which makes me even more emotional.  Sharp hunger pangs are, ironically, caused by eating normally, instead of restricting, or bingeing and purging.  Not purging does that to my metabolism.  It’s a cruel trick, isn’t it?  Ha!  Eat and keep it down and you will feel absolutely famished.  It’s my metabolism repairing itself.  🙁

And I have no money to buy more food.  I have to wait on a measly, slow paycheck to come in the mail.  It will be for less than a hundred dollars and I will have to budget it out.  I hate my life.  I’m tired of begging my family for handouts.  I’m so pathetic.  Is this all I have to look forward to?  Living like this for the rest of my life?  I’m trapped in a hell I can’t escape.  How could anyone on the outside understand?  I am drowning.

I am drowning. 

Then I read on Being Beautifully Bipolar, something that resonated with me.  She’s attempted suicide three times, but is making the decision not to attempt a fourth time.

Today has been one of those days when  I have spent the better part of it in bed. I think I am a loser. I think I am a failure. I compare my life to others’ with jobs and houses and families. I think of all those great boyfriends that didn’t pick me. This isn’t self-pity. This is depression. This is wishing my head would stop hurting, that the anger and frustration I have been feeling for weeks would go away. This is wishing it would all stop.

And there it is – the lie. I don’t want it all to stop. I just want to stop feeling this way. There IS a difference.-bbb

“And there it is – the lie. I don’t want it all to stop. I just want to stop feeling this way. There IS a difference.”

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RESOURCES:

American Foundation for Suicide Prevention (AFSP): www.afsp.org
https://afsp.org/find-support/

National Alliance on Mental Illness (NAMI): www.nami.org

Depression and Bipolar Support Alliance (DBSA): www.dbsa.org

National Suicide Prevention Hotline: 800.273.TALK

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Can Caffeine Offer Mild Treatment For Depressive & ADHD Symptoms?

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Read this entire article on InsightBulletin

Can Caffeine Offer Mild Treatment For Depressive and ADHD Symptoms?

For parents who say they don’t want to administer drugs or chemicals to their child for their ADHD symptoms, a cup of coffee brewed from organically grown coffee beans might be the more attractive alternative. When considering our rising healthcare costs, its ubiquity, affordability, and ease of use are what make caffeine an intriguing option for an adult or child with ADHD. All of those factors make this consideration difficult to pass up.

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For a lot of people, too much caffeine can have a negative emotional effect: it can contribute to anxiety, jitteriness, irritability, impulsivity, and insomnia. A moderate amount of caffeine does the opposite for me.

Because many people experience jitteriness and increased anxiety when they consume too much caffeine, my personal experience may seem counterintuitive, but I’m not an anomaly.  According to a 2005 study of rats with hyperactivity, impulsivity, poor attention and deficits in learning and memory, a significant improvement was reported in test results when caffeine was administered to the rats beforehand. And in a 10-year study, spanning from 1996 to 2006, researchers found that depression risk in human females decreases with increasing caffeinated coffee consumption. The study included 50,739 women and the clinical depression was “defined as self-reported physician-diagnosed depression and antidepressant use.”

Accordingly, moderate caffeine intake (< 6 cups/day) has been associated with less depressive symptoms, fewer cognitive failures, and lower risk of suicide…READ MORE

 


 

 


What Is Stigma?

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Three out of four people with a mental illness report that they have experienced stigma.

75 percent!

What is Stigma? 

Stigma is a mark of disgrace and/or public shunning that sets a person apart.

Stigma can evoke feelings of: 

  • shame

  • self-blame

  • hopelessness & distress

  • reluctance to seek and/or accept necessary help

    Families are also affected by stigma, which, in turn, can lead to a lack of support. For mental health professionals, stigma means that they themselves are seen as abnormal, corrupt or evil, and psychiatric treatments are often viewed with suspicion, fear, or disgust.

 How is stigma perpetuated? 

 When a person is labeled by their illness they are seen as part of a stereotyped group. Negative attitudes create prejudice which leads to negative actions and discrimination.

When Star Wars’ Jake Lloyd’s schizophrenia got him into trouble, he received very little media empathy. In fact, there was much parody made of him, not only making light of a very serious illness but publicly shaming him. It made me so furious that so many media outlets could be so irresponsible, cruel, and dangerous in their public messages –some of which went viral– that I wrote the following about how they propagated the stigma of mental illness. 

The article is live on Odyssey

*READ THE FULL STORY HERE*

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What Is Paranoia?

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, like any other emotion, falls on a spectrum; there are varying intensities of the feeling, and, depending on the context or situation, it can endure for any given length of time.  Everyone feels anxious now and then, say, before an interview or while preparing to go on a .  But feeling anxious all the time is another story altogether.  Anxious and fearful, that is.

Read more at InsightBulletin


I Wear My Sunglasses At Night So I Can, So I can…Sleep

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It’s no secret that I have a sleep cycle that’s perpetually in flux.  Days with no sleep aren’t uncommon, but neither are days comprised of sleep and only sleep.  My bipolar disorder is the conductor of its rhythm and, although I try to maintain a traditional schedule, my neurological pathways beg to differ.

I blog about the challenges of finding balance often.  I know that the disruption of natural biological rhythm contributes towards aggravating my bipolar symptoms.  Insomnia reinforces or creates states of hypomania, mania, or a mixed episode.  Oversleeping and depression are correlated.  I know this.  And it’s not just how many or how few hours I spend sleeping.  It’s when I’m sleeping.  And for the better part of the last year, when I did sleep, my body has desperately wanted to sleep through the day and be awake during the night, all night.  I’ve been totally mixed up.

Let’s say I began with a state of something akin to alert wakefulness somewhere in the afternoon hour.  I’d exercise, do chores around my house, get a ton of writing done, eat meals around the times that a person would if the p.m. were actually a.m. and vice versa.  I’d get so much done, in fact, that I’d keep working and keep working through to the next day.  But instead of going to sleep during what was “my nighttime”, I’d still be awake because, of course, the sun was out now.  So by the next day, a little bit of hypomania kicks in, but I’ve got no idea, because, you see, I’m getting so much done!  

At this point in my sleep-wake cycle, I’m not paying any attention whatsoever, because (according to what I think at the time) I’m producing the most articulate and comprehensible delight for which any editor in their right mind would be champing at the bit!   Only, I’m not in my right mind, just my write mind.

Fortunately, because of my medication-mainly the mood stabilizer and antipsychotic medication-I’m prevented from escalating into full-blown mania, or worse, a mixed episode.  I don’t know how many days pass like this.  Not many because I’m Ultradian Rapid Cycling.

And then.

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